Deondra Dixon Include Project Act of 2025

Floor Speech

Mr. Speaker, my bill with Representative Hudson, the DeOndra Dixon INCLUDE Project Act, codifies the renaissance in Down syndrome research at NIH that was kicked off when the INCLUDE Project began in 2018. This bill sustains and encourages this critical research.

After being left behind by NIH for nearly 20 years, the Down syndrome community is finally seeing research advancements that will extend and improve their lives. What we learn from this research will not only help us better understand Down syndrome but also heart disease, Alzheimer's, cancer, and many co-occurring conditions.

I am so proud that much of this work is happening right in my home district of Denver, Colorado. The Crnic Institute for Down syndrome on the Anschutz Medical Campus leads more than 200 scientists at the largest Down syndrome research facility in the world. They see incredible breakthroughs every day.

This type of innovation puts science first and benefits not only individuals living with Down syndrome and their families but every single one of us because we are learning more and more about disease biology and just why some conditions work differently in people with Down syndrome.

It is why the bill passed the House last Congress with unanimous support. I am so happy that I was able to work for many years with my friend, the former chair of the Energy and Commerce Committee, Cathy McMorris Rodgers, on this bill in the last Congress. I know it is a labor of love and deeply personal for her family and every family that has been touched by Down syndrome.

It has been an honor to also work with my constituent, Michelle Sie Whitten, the president of the Quincy Jones Exceptional Advocacy Award, a driving force for this bill, and a fierce advocate for her daughter and everyone with Down syndrome. It has also been an honor to work with my friend and colleague Representative Hudson, whose dedication to the Down syndrome community has been essential to push this bill closer to the finish line. I simply could not have had a better partner on this issue.

The INCLUDE Project Act will ensure that critical Down syndrome research continues to advance. This year, it must finally be enacted into law.

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