Recognizing Familial Adenomatous Polyposis Awareness Week

Floor Speech

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Ms. MATSUI. Mr. Speaker, I rise today to recognize and commemorate June 14, 2026, through June 20, 2026 as Familial Adenomatous Polyposis (FAP) Awareness Week.

FAP is a rare, inherited genetic condition that causes the development of thousands of colorectal polyps, and without early detection and treatment, it carries a near certainty of progression to colorectal cancer. It is estimated to affect approximately 1 in 10,000 to 1 in 22,0000 individuals, with many cases arising from spontaneous genetic mutations. While FAP is rare, its impact is profound, often affecting multiple generations within a family and requiring lifelong medical management, genetic counseling, and proactive surveillance beginning in adolescence.

As someone committed to improving rare disease care, I believe FAP Awareness Week highlights the need for greater publilc education and earlier screening. When identified early, FAP can be effectively managed to dramatically reduce the risk of cancer and save lives. However, many individuals remain undiagnosed until the disease has progressed. Hence, there is the urgent need for increased awareness among both the public and healthcare providers.

This week highlights the importance of raising awareness about hereditary colorectal cancer syndromes, supporting individuals and families impacted by them, and expanding access to genetic testing and specialized care. It also underscores the vital role of research, advocacy, and early detection in improving outcomes for people living with rare genetic conditions.

This recognition honors patients, families, clinicians, and advocates who continue to raise awareness of FAP and work tirelessly to ensure that no diagnosis comes too late.

Mr. Speaker, I ask all my colleagues to join me in honoring June 14, 2026, through June 20, 2026, as Familial Adenomatous Polyposis Awareness Week.

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