Recognizing Elizabeth Kennerley's Tireless Rare Disease Advocacy

Floor Speech

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Mr. FITZPATRICK. Mr. Speaker, I rise today to recognize an extraordinary constituent from my district, Elizabeth Kennerley. As a rare disease patient, advocate, and unwavering supporter of inclusive healthcare, Liz has devoted her life to making a meaningful impact on her community and those affected by rare diseases. She continues to inspire those around her, with her astounding selflessness and resilience.

Liz's journey is one that few can imagine. As someone who lives with the burden of a rare disease, Liz has not only used her personal journey to advocate for others but has also dedicated herself to advocating on Capitol Hill for those living with rare diseases. She is also a dedicated member of the Rare Disease Diversity Coalition (RDDC), where she works to ensure that the needs of rare disease patients are heard. Liz's work with the RDDC has been instrumental in promoting inclusivity in healthcare policy.

The RDDC proudly awarded Liz this year's RISE Award, as she consistently embodies the very essence of what RISE stands for Resilience, Inspiration, Strength, and Empowerment.

As Liz would say, ``being a patient with a rare disease is the hardest job in the world,'' a sentiment that highlights the incredible challenges and resilience required to live with a rare disease. Through her unwavering dedication, Liz ensures that the voices of rare disease patients are heard. We thank her for her dedicated service to our community.

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