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Floor Speech

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Ms. COLLINS. Madam President, I rise today to introduce two bills aimed at continuing the important progress we are making to prevent and effectively treat Alzheimer's disease. I know how devastating this disease is to our families. My father, grandfather, and two uncles all died from Alzheimer's. I am committed to this effort both as a person whose beloved family members have suffered from this terrible disease, as well as a Senator concerned about the impact on our families and our healthcare system.

When I founded the Congressional Alzheimer's Task Force in the Senate in 1999, there was virtually no focus on Alzheimer's in Washington. Twelve years ago, I coauthored the bipartisan National Alzheimer's Project Act with my colleague Senator Evan Bayh. Before we passed that legislation, there was no coordinated, strategic, national plan to focus our efforts to defeat Alzheimer's. NAPA fixed this by convening a panel of experts to create a coordinated strategic national plan to prevent and effectively treat Alzheimer's disease by 2025. The expert council updates the plan annually.

While the 2025 goal has been elusive, we have made some progress in our efforts to find a treatment and a means of prevention. Nevertheless, Alzheimer's remains the fifth leading cause of death in the United States for people over 65. In addition to the human costs, caring for people living with Alzheimer's and other dementias is one of the costliest conditions to society, costing our Nation an astonishing $321 billion per year, including $206 billion in Medicare and Medicaid spending. If we continue along this trajectory, Alzheimer's is projected to claim the minds of 12.7 million seniors and nearly surpass $1 trillion in annual costs by 2050.

It takes a tremendous toll on families too. In 2021, family caregivers provided 16 billion hours of unpaid care for loved ones with dementia, a contribution to society valued at more than $271 billion. That job is often 24/7 and often harms the health of the caregiver.

The first bill I am introducing today with my colleagues Senators Warner, Capito, Markey, Moran, Menendez, Murkowski, and Stabenow is the NAPA Reauthorization Act. This bill would reauthorize the National Alzheimer's Project Act through 2035 and modernize the legislation to reflect strides we have made in understanding the disease, such as including a new focus on promoting healthy aging and reducing risk factors. The National Alzheimer's Project Act is set to expire in 2025. We need to reauthorize this critical legislation this Congress in order to ensure that our research investments remain coordinated and there are no disruptions as we maximize the impact of our investments.

The second bill I am introducing with my colleagues Senators Markey, Capito, Warner, Moran, Menendez, Murkowski, and Stabenow is the Alzheimer's Accountability and Investment Act. This bill would continue through 2035 a requirement that the Director of the National Institutes of Health submit an annual budget to Congress estimating the funding necessary for NIH to fully implement NAPA's research goals. Only two other areas of biomedical research--cancer and HIV/AIDs--have been the subject of special budget development aimed at speeding discovery, and this ``bypass budget,'' as it is known, helps us to understand what additional funding is needed to find better treatments, a means of prevention, and ultimately a cure for Alzheimer's disease.

Nearly half of baby boomers reaching age 85 will either be afflicted with Alzheimer's or caring for someone who has it. In many ways, Alzheimer's is the defining disease of this generation. We have made tremendous progress in recent years to boost funding for Alzheimer's research, most recently providing $3.74 billion--a $226 million increase--for NIH Alzheimer's research in the fiscal year 2023 government funding bill. This investment holds great promise to ending this disease that has had such a devastating effect on millions of Americans and their families, but we must keep up this momentum. The two bills I introduce today will make sure that we do not take our foot off the pedal just as our investments in basic research are beginning to translate into potential new treatments. We must not let Alzheimer's define our children's generation as it has ours.

I urge my colleagues to support the NAPA Reauthorization Act and Alzheimer's Accountability and Investment Act, and I thank the Alzheimer's Association and UsAgainstAlzheimer's for their support of this bipartisan legislation to help improve the lives of those affected by Alzheimer's throughout the country.

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