Introduction of the Rare Disease Day Resolution

Floor Speech

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Mr. Speaker, in the United States, rare disorders and diseases are defined as conditions that affect fewer than 200,000 Americans. These conditions range from neurological diseases to devastating disorders that affect development. One thing that all of the patients and families affected by these conditions have in common is the need for education, research and treatment.

Though supporting research and development at the National Institutes of Health and the Food and Drug Administration, Congress has recognized the necessity for investment in lifesaving innovations that have an impact on rare diseases. On the last day in February each year, people all around the world unite to share their stories and educate communities of researchers, health professionals, governments, families and friends about how rare diseases affect them. I am introducing this resolution to encourage my colleagues in Congress to recognize the challenges facing the rare disease patient community and support efforts to improve access to treatments and cures.

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