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A 7845 - Establishes a Registry to Collect Information on the Incidence and Prevalence of ALS and MND - New York Key Vote

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Title: Establishes a Registry to Collect Information on the Incidence and Prevalence of ALS and MND

Signed by Governor Kathy Hochul


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Title: Establishes a Registry to Collect Information on the Incidence and Prevalence of ALS and MND

Vote Smart's Synopsis:

Vote to pass a bill that establishes a registry to collect information on the incidence and prevalence of ALS and MND in New York.

Highlights:

  • Requires medical practitioners to provide notice of an ALS or MND diagnosis no later than 180 days from each case coming under their care (Sec. 2021).

  • Requires all patients diagnosed to be provided written and verbal notice of the collection of information and patient data, and allows those who choose not to participate to opt out in writing (Sec. 2021).

  • Establishes a registry for the collection of information on incidence and prevalence of ALS and MND (Sec. 2022).

  • Requires the Department of Health to maintain the database in a manner suitable for research purposes (Sec. 2023).

  • Require the identity of all patients to remain confidential (Sec. 2023).

  • Authorizes the Commissioner of Health to establish regulations for the implementation of the provisions of this law (Sec. 2024).

Full Bill Text

Title: Establishes a Registry to Collect Information on the Incidence and Prevalence of ALS and MND

Title: Establishes a Registry to Collect Information on the Incidence and Prevalence of ALS and MND

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